6 months after Bret Canham had HSCT treatment in India he has gone from being completely bed ridden to standing with the assistance of his carers! This is an incredible moment for Bret and his entire family is so proud of him!!! We cannot wait to see his next level of progression and support him as Bret Canham continues his road to recovery.
Posted by Hayley Joy Carpenter
Hi Everyone, this is my history photo with Dr Collin Andrews and his A1 team in Canberra, Australia. I am eternally indebted to Dr Andrews (neurologist), who showed leadership in this country getting HSCT going. He first saved a 18 year old young man Ben Leahy. Ben had a very aggressive form of MS where his organs began to shut down. He is back at uni now running with his mum. I was the first female after Ben. As I was in a wheelchair after my first child, my recovery has been nothing short of a miracle. Bless Dr Andrews and Dr Pidcock. These are the two doctors I owe my life to. Any academic paper I complete will be dedicated to these two doctors.
This forum has been and continues to be very informative, supportive AND loving. You are in good hands. I live in London. I chose not to use disease modifying drugs since diagnosis in 2007 and my MS was not considered to be aggressive so treatment here was not an option for me (or so I thought). So, I went to Moscow for non-myeleoblative HSCT and am 12 months post treatment. HSCT is definitely something that one must think seriously about before embarking on it but I am definitely happy to have gone ahead with it. My only wish is that it was clearly available for me as little as 18 months prior to actually having treatment. I used to be very active too and was a female boxer for 13 years but my mobility is currently limited. It would have been ideal to get this treatment on the NHS in my own country but at the moment, there is no specific patient protocol which could leave you hanging around as they try and decide what to do. While this is going on, you could be continuing to deteriorate as I did. HSCT is now clear & here so do all your research and once you're in the know and if you decide to go ahead, waste no time getting it done. I was the first English speaking Brit to have treatment in Moscow. The Dr and his team were fantastic. It saddens me to say that I think I'd prefer to have this type of treatment in Moscow than have it here right now. Please feel free to go to my website. The very best of luck to you.
Hello Group, I just wanted to post an update today since I am at 19 months Post-HSCT transplant today. I am happy to say that I am still improving which each passing day. I am walking unaided 100% now, and regaining the sensation in my left leg. I actually spent the afternoon outside walking though an outdoor mall, and then came home and walked the puppies a half mile in our neighborhood. I am really enjoying the fall weather, and loving being able to spend quality time with my loved ones instead or worrying if I "should" go or if I "could" go. I can't express how truly grateful I am for your support during the transplant and my recovery. This transplant has truly given me back my life, so I feel amazingly blessed. I do plan on posting new pictures soon and hopefully a video to show the progress I am making. I know my neurologist says I will never be 100% again, but I will continue to push myself forward in my recovery and cherish every single improvement that I am able to make. Thank you all for your love, prayers, and support. Love you All.
It has been one month since I left AA Maximov Hospital and, following a number of emails from family and friends wondering why I had 'dropped off the radar', I thought it was time for an update. The truth is, it is hard to find time to blog when I am challenged by the treatment paradox that dictates I will feel more ill after HSCT than before. Intensive chemotherapy greatly weakens the body, so the weakness I had previously experienced because of MS is now multiplied. It does not matter how much the patient is forewarned, it certainly plays mind games in your head... constantly wondering if the treatment worked or if you are going to be the anomaly for whom it did not work.